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DeCamp, Matt. 2022. "Ethical Challenges When Engaging Patients and Families in End-of-Life and Palliative Care Research". Qualitative Data Repository. https://doi.org/10.5064/F6WKR6ED. Palliative Care Research Cooperative QDR-EOLPC . V1
Project Overview Background: Delivering high quality, patient- and family-centered care depends upon high quality end-of-life and palliative care (EOLPC) research. Engaging patients and families as advisors, partners, or co-investigators throughout the research lifecycle is widel...
Jun 8, 2022 - Security Studies
Plapinger, Samuel. 2022. "Online Appendices for: "Insurgent Recruitment Practices and Combat Effectiveness in Civil War: The Black September Conflict in Jordan"". Qualitative Data Repository. https://doi.org/10.5064/F617CWDH. Security Studies. V1
These appendices provide supplementary information and background for the corresponding article published in Security Studies. The appendices include: (a) an extended discussion of the fieldwork that informed the article; (b) methodology and coding information for variables used...
Lum, Hillary. 2022. "Understanding advance care planning in patients and care partners living with Parkinson’s disease". Qualitative Data Repository. https://doi.org/10.5064/F6GZGCJB. Palliative Care Research Cooperative QDR-EOLPC . V1
Project Summary Objective: Advance care planning (ACP) is a core quality measure in caring for individuals with Parkinson disease (PD) and there are no best practice standards for how to incorporate ACP into PD care. This study describes patient and care partner perspectives on A...
Apr 19, 2022
Drakopulos, Lauren Alexandra; Havice, Elizabeth; Crisp, Katie; Zurita Posas, Ana; Campbell, Lisa M.. 2022. "Catalog of Ocean Data Science Initiatives". Qualitative Data Repository. https://doi.org/10.5064/F6ZQWQJS. QDR Main Collection. V1
Project Overview This dataset is a catalog of oceans data science initiatives (ODSIs). We define an ODSI as an initiative that mobilizes (often geospatial and temporal) big data and/or novel data sources about the oceans with an express goal of informing or improving conditions i...
Apr 1, 2022
Galli, Chiara. 2022. "The Effects of the Law on the Lives of Central American Unaccompanied Minors in the US". Qualitative Data Repository. https://doi.org/10.5064/F6CBM0MJ. QDR Main Collection. V1
Project Summary: Over a half million unaccompanied minors have been apprehended at the US-Mexico border in the past 10 years. They hail from Honduras, El Salvador, and Guatemala, countries where human rights violations, violence, and insecurity are widespread, and teenagers are e...
Mar 30, 2022
Virbel-Fleischman, Clara. 2022. "Data for: Body-Worn Sensors for Parkinson's Disease: A Qualitative Approach with Patients and Healthcare Professionals". Qualitative Data Repository. https://doi.org/10.5064/F6XAGL0F. QDR Main Collection. V1
Project Summary: Body-Worn Sensors (BWS) provide reliable objective and continuous assessment of Parkinson's disease (PD) motor symptoms, but their implementation in clinical routine has not yet become widespread. Users’ perceptions of BWS have not been explored. This study inten...
Mar 28, 2022
Ivanov, Ivan Dinev. 2019. "Organizational Response to Emerging Threats: Lessons from NATO and the European Union’s Responses to Peacebuilding, Cyber Threats and Energy Security". Qualitative Data Repository. https://doi.org/10.5064/F61MNQL0. QDR Main Collection. V2
The overall purpose/rationale of this research project is to develop a framework that explains how different international organizations (IOs) respond to various emerging threats in international relations. These threats can vary and include cybersecurity, energy security, food s...
Mar 28, 2022
Valand, Ida Ulrikke. 2022. "Data for “It is really just brilliant to get credits for something that is so important to you!” Skills for Life: University students’ perceptions of a planned dietary life skills course". Qualitative Data Repository. https://doi.org/10.5064/F6TSKFFN. QDR Main Collection. V1
Project Summary In this qualitative study, 13 semi-structured focus group discussions (FGDs) with a total of 57 university students (35 women and 22 men) were conducted to explore their views on a proposed dietary life skills course and potential barriers and facilitators to enga...
Mar 17, 2022
Mueller, Jennifer; Kirstein, Marielle; VandeVusse, Alicia; Lindberg, Laura. 2022. "Data for: Improving Abortion Underreporting in the United States: A Cognitive Interview Study". Qualitative Data Repository. https://doi.org/10.5064/F6V5VGX3. QDR Main Collection. V1
Project Summary: The purpose of this study was to inform experimental testing of new approaches for measuring abortion in surveys in the United States, by improving our understanding of how women interpret and respond to survey items asking them to report their abortion history....
Mar 16, 2022
Awasthi, Kiran. 2022. "Data for: A Qualitative Study of Knowledge, Attitude and Perceptions towards Malaria Prevention among People Living in Rural Upper River Valleys of Nepal". Qualitative Data Repository. https://doi.org/10.5064/F6WMOBYB. QDR Main Collection. V1
Project Summary: Nepal has made significant progress in decreasing the number of malaria cases over the last two decades. Prevention and timely management of malaria are critical for the National Malaria Program in its quest for elimination. The study aimed to explore the knowled...
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