Data for: Barriers to Hospice and Palliative Care Utilization Among Adolescent and Young Adult Cancer Patients Living in Povertydoi:10.5064/F6LBYMQOQualitative Data Repository2021-04-222Mack, Jennifer. 2021. "Data for: Barriers to Hospice and Palliative Care Utilization Among Adolescent and Young Adult Cancer Patients Living in Poverty". Qualitative Data Repository. https://doi.org/10.5064/F6LBYMQO. Palliative Care Research Cooperative QDR. V2Data for: Barriers to Hospice and Palliative Care Utilization Among Adolescent and Young Adult Cancer Patients Living in Povertydoi:10.5064/F6LBYMQOMack, JenniferCurrie, Erin R.Martello, VincentGittzus, JordanIsack, AsisaFisher, LaurenLindley, LisaGilbertson-White, StephanieRoeland, EricBakitas, MarieR21 R21NR016580R21 R21NR016580Qualitative Data RepositoryQualitative Data RepositoryMack, JenniferFisher, Lauren2021-03-222021-04-22Medicine, Health and Life SciencesOtherpalliative treatmentterminal carecancer<h3>Project Summary</h3> <i>Background</i>: Adolescents and young adults (AYAs; aged 15-39 years) with cancer frequently receive intensive measures at the end of life (EoL), but the perspectives of AYAs and their family members on barriers to optimal EoL care are not well understood.<br> <i>Methods</i>: We conducted qualitative interviews with 28 bereaved caregivers of AYAs with cancer who died in 2013 through 2016 after receiving treatment at 1 of 3 sites (University of Alabama at Birmingham, University of Iowa, or University of California San Diego). Interviews focused on ways that EoL care could have better met the needs of the AYAs. Content analysis was performed to identify relevant themes.<br> <i>Results</i>: Most participating caregivers were White and female, and nearly half had graduated from college. A total of 46% of AYAs were insured by Medicaid or other public insurance; 61% used hospice, 46% used palliative care, and 43% died at home. Caregivers noted 3 main barriers to optimal EoL care: (1) delayed or absent communication about prognosis, which in turn delayed care focused on comfort and quality of life; (2) inadequate emotional support of AYAs and caregivers, many of whom experienced distress and difficulty accepting the poor prognosis; and (3) a lack of home care models that would allow concurrent life-prolonging and palliative therapies, and consequently suboptimal supported goals of AYAs to live as long and as well as possible. Delayed or absent prognosis communication created lingering regret among some family caregivers, who lost the opportunity to support, comfort, and hold meaningful conversations with their loved ones.<br> <i>Conclusions</i>: Bereaved family caregivers of AYAs with cancer noted a need for timely prognostic communication, emotional support to enhance acceptance of a poor prognosis, and care delivery models that would support both life-prolonging and palliative goals of care. Work to address these challenges offers the potential to improve the quality of EoL care for young people with cancer.2013-01-012016-12-312017-06-012018-04-01interview transcripts<p>Data access requires submission of a research plan, data security plan, and signing a data use agreement.</p><a href="https://qdr.syr.edu/policies/qdr-restricted-access-conditions">Controlled Access</a>Quantitative Data: Mack, Jennifer. n.d. "Barriers to Hospice and Palliative Care Utilization Among Adolescent and Young Adult Cancer Patients Living in Poverty". <i>PCRC De-identified Data Repository (DiDR)</i>. <a href="https://palliativecareresearch.org/study/barriers-hospice-and-palliative-care-utilization">https://palliativecareresearch.org/study/barriers-hospice-and-palliative-care-utilization</a>Mack, J. W., Currie, E. R., Martello, V., Gittzus, J., Isack, A., Fisher, L., Lindley, L. C., Gilbertson-White, S., Roeland, E., & Bakitas, M. (2021). Barriers to optimal end-of-life care for adolescents and young adults with cancer: Bereaved caregiver perspectives. <i>Journal of the National Comprehensive Cancer Network</i>. Advance online publication.10.6004/jnccn.2020.7645Mack, J. W., Currie, E. R., Martello, V., Gittzus, J., Isack, A., Fisher, L., Lindley, L. C., Gilbertson-White, S., Roeland, E., & Bakitas, M. (2021). Barriers to optimal end-of-life care for adolescents and young adults with cancer: Bereaved caregiver perspectives. <i>Journal of the National Comprehensive Cancer Network</i>. 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