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Part 1: Document Description
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Citation |
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Title: |
Data for: Qualitative Data Sharing: Participant Understanding, Motivation, and Consent |
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Identification Number: |
doi:10.5064/F6YYA3O3 |
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Distributor: |
Qualitative Data Repository |
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Date of Distribution: |
2021-08-12 |
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Version: |
2 |
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Bibliographic Citation: |
VandeVusse, Alicia; Mueller, Jennifer. 2021. "Data for: Qualitative Data Sharing: Participant Understanding, Motivation, and Consent". Qualitative Data Repository. https://doi.org/10.5064/F6YYA3O3. QDR Main Collection. V2 |
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Citation |
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Title: |
Data for: Qualitative Data Sharing: Participant Understanding, Motivation, and Consent |
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Identification Number: |
doi:10.5064/F6YYA3O3 |
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Authoring Entity: |
VandeVusse, Alicia (https://ror.org/01yrmk064) |
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Mueller, Jennifer (https://ror.org/01yrmk064) |
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Grant Number: |
R01HD084473 |
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Distributor: |
Qualitative Data Repository |
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Distributor: |
Qualitative Data Repository |
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Access Authority: |
Mueller, Jennifer |
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Depositor: |
Mueller, Jennifer |
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Date of Deposit: |
2021-08-03 |
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Date of Distribution: |
2021-08-12 |
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Holdings Information: |
https://doi.org/10.5064/F6YYA3O3 |
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Study Scope |
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Keywords: |
Medicine, Health and Life Sciences, Social Sciences, abortion, Qualitative research, informed consent, data, Cisgender people, Transparency, data sharing |
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Abstract: |
<h3>Project Summary</h3> <p>As part of a qualitative study of abortion reporting in the United States, the research team conducted cognitive interviews to iteratively assess new question wording and introductions designed to improve the accuracy of abortion reporting in surveys (to be shared on the Qualitative Data Repository in a separate submission). As expectations to share the data that underlie research increase, understanding how participants, particularly those taking part in qualitative research, respond to requests for data sharing is necessary. We assessed research participants’ willingness to, understanding of, and motivations for data sharing.</p> <h3>Data Overview</h3> <p>The data consist of excerpts from cognitive interviews with 64 cisgender women in two states in January and February of 2020 in which researchers asked for respondents for consent to share de-identified data. Eligibility criteria included: assigned female at birth, currently identified as a woman between the ages of 18-49, English-speaking, and reported ever having penile-vaginal sex. Respondents were screened for abortion history as well to ensure that at least half the sample reported a prior abortion. At the end of interviews, participants were asked to reflect on their motivations for agreeing or declining to share their data. The data included here are coded excerpts of their answers. Most respondents consented to data sharing, citing helping others as a primary motivation for agreeing to share their data. However, a substantial number of participants demonstrated limited understanding of “data sharing.” Data available here include the following materials: overview of methods, cognitive interview consent form (with language for data sharing consent), and data sharing analysis coding scheme.</p> |
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Time Period: |
2020-01-2020-02 |
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Date of Collection: |
2020-01-2020-02 |
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Kind of Data: |
interview transcripts |
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Kind of Data: |
coded qualitative data |
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Methodology and Processing |
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Sources Statement |
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Data Access |
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Notes: |
<a href="https://qdr.syr.edu/policies/qdr-standard-access-conditions">Standard Access</a> |
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Other Study Description Materials |
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Related Publications |
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Citation |
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Title: |
VandeVusse, A., Mueller, J., & Karcher, S. (2021). Qualitative data sharing: Participant understanding, motivation, and consent. <i>Qualitative Health Research</i>. |
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Identification Number: |
10.1177/10497323211054058 |
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Bibliographic Citation: |
VandeVusse, A., Mueller, J., & Karcher, S. (2021). Qualitative data sharing: Participant understanding, motivation, and consent. <i>Qualitative Health Research</i>. |
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Citation |
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Title: |
VandeVusse, Alicia, Jennifer Mueller, and Sebastian Karcher. 2021. “Qualitative Data Sharing: Participant Understanding, Motivation, and Consent.” <i>SocArXiv</i>. March 12. |
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Identification Number: |
10.31235/osf.io/ghkjz |
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Bibliographic Citation: |
VandeVusse, Alicia, Jennifer Mueller, and Sebastian Karcher. 2021. “Qualitative Data Sharing: Participant Understanding, Motivation, and Consent.” <i>SocArXiv</i>. March 12. |
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File Description--f24770 |
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File: VandeVusse-Mueller_DataSharingCodingScheme.tab |
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Notes: |
UNF:6:OYxY/8dZgqirnDBFhbuTiA== |
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File Description--f24771 |
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File: VandeVusse-Mueller_DataSharingNodeAnalysis.tab |
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Notes: |
UNF:6:wCuYXQPe8MC0Hv49Mo5WHQ== |
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List of Variables: |
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Variables |
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f24770 Location: |
Variable Format: character Notes: UNF:6:ZQixND8ptk4C5NFyy+cQeQ== |
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f24770 Location: |
Variable Format: character Notes: UNF:6:UmkH641/UUxWhVo44pRuQA== |
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f24770 Location: |
Variable Format: character Notes: UNF:6:fX5RQNotPaMmckYPeC63bg== |
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f24770 Location: |
Variable Format: character Notes: UNF:6:ziEy3AHITrFTNklzfsq5rg== |
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f24770 Location: |
Variable Format: character Notes: UNF:6:1qisfeBOxDdeTxuUgXpS9A== |
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f24770 Location: |
Variable Format: character Notes: UNF:6:RwvAQAEx22zc2Bh0CJ2jug== |
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f24770 Location: |
Variable Format: character Notes: UNF:6:Wl63UqgJDOgWtzcjSISPXA== |
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f24770 Location: |
Variable Format: character Notes: UNF:6:R0WXetztguEL5TS+zvaJ6w== |
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Label: |
README_VandeVusse-Mueller.txt |
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Notes: |
text/plain |
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Label: |
VandeVusse-Mueller_CognitiveInterviewConsentForm.pdf |
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Notes: |
application/pdf |
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Label: |
VandeVusse-Mueller_DataSharingOverviewMethods.pdf |
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Notes: |
application/pdf |