Data for: Qualitative Data Sharing: Participant Understanding, Motivation, and Consent

Version 2.0
Data for: Qualitative Data Sharing: Participant Understanding, Motivation, and Consent
VandeVusse, Alicia; Mueller, Jennifer. 2021. "Data for: Qualitative Data Sharing: Participant Understanding, Motivation, and Consent". Qualitative Data Repository. https://doi.org/10.5064/F6YYA3O3. QDR Main Collection. V2
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Description

Project Summary

As part of a qualitative study of abortion reporting in the United States, the research team conducted cognitive interviews to iteratively assess new question wording and introductions designed to improve the accuracy of abortion reporting in surveys (to be shared on the Qualitative Data Repository in a separate submission). As expectations to share the data that underlie research increase, understanding how participants, particularly those taking part in qualitative research, respond to requests for data sharing is necessary. We assessed research participants’ willingness to, understanding of, and motivations for data sharing.

Data Overview

The data consist of excerpts from cognitive interviews with 64 cisgender women in two states in January and February of 2020 in which researchers asked for respondents for consent to share de-identified data. Eligibility criteria included: assigned female at birth, currently identified as a woman between the ages of 18-49, English-speaking, and reported ever having penile-vaginal sex. Respondents were screened for abortion history as well to ensure that at least half the sample reported a prior abortion. At the end of interviews, participants were asked to reflect on their motivations for agreeing or declining to share their data. The data included here are coded excerpts of their answers. Most respondents consented to data sharing, citing helping others as a primary motivation for agreeing to share their data. However, a substantial number of participants demonstrated limited understanding of “data sharing.” Data available here include the following materials: overview of methods, cognitive interview consent form (with language for data sharing consent), and data sharing analysis coding scheme.

Subject Medicine, Health and Life Sciences; Social Sciences
Keyword abortion, Qualitative research, informed consent, data, Cisgender people, Transparency, data sharing
Related Publication VandeVusse, Alicia, Jennifer Mueller, and Sebastian Karcher. 2021. “Qualitative Data Sharing: Participant Understanding, Motivation, and Consent.” Qualitative Health Research. doi: 10.1177/10497323211054058. doi: 10.1177/10497323211054058
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README_VandeVusse-Mueller.txt
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