Project Overview
The broader study investigates the impact of a clinic-based stigma-reducing cervical cancer education program in Kisumu, Kenya. This deposit includes the mixed-methods data from a workflow study nested in a two-part cluster-randomized control trial in six government-supported health clinics. In the study, researchers observed the workflow of HPV screening video-assisted and standard health education and evaluated community and clinic health assistant facilitation (CCHA), duration, and feasibility of the intervention. The results of an additional stigma-focused survey with 400 participants are not included in this deposit.
Data and Data Collection Overview
Using existing literature as a guide, the researchers created a focus group discussion guide with content specific to exploring HPV and cervical cancer stigma. Focus group guides were translated into the local language and back-translated to ensure clarity of content. Women who met eligibility criteria and who presented to the selected Ministry of Health clinics (randomized into 3 control and 3 intervention sites) either for routine care or through direct recruitment from the research team, were asked to participate.
Data collection occurred in two ways: (1) focus groups and (2) on-site observations at clinics. The researchers conducted 3 focus groups (with about 5-8 participants each) with thirty HPV screening-eligible woman and made thirty-three observations each (for a total of 66 observation values) at the six government-supported clinic sites.
Focus group discussions were audio-recorded, transcribed, and translated into English. These qualitative data were then analyzed using NVivo software. The researchers also performed content analysis.
The on-site observations were conducted on a weekly basis for the six weeks of the stigma intervention, up to six observations per clinic. All observation data (called "field notes" in the deposit) were collected at the facility level and were aggregated and de-identified.
Shared Data Organization
The data files included in this data project consist of three focus group discussion transcripts and the aggregate on-site observations (“field notes”). The documentation files consist of the informed consent script used for participants, the focus group guide (questions and probes), the observations questionnaires (for the control and intervention clinics), the qualitative analysis codebook, a data narrative, and an administrative README file. |
