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Adobe PDF - 234.2 KB - SHA512: ff29eab07ebed915a127d0c71923dc316f6b22cd2580a156491af67f59b5e15563ac4f69e469e36333ca1a998943cbf89a834b1c6e8574ac471098662315dd49
Documentation
Adobe PDF - 112.7 KB - SHA512: 4403c6b88c7aac1e3d2dd9af93df33d0a7e8353a6c05cc2203f274d455f8fef5dc50d0dd4e1630820e82dc6f8455908f12c87f14ee2444c01b4007b01f6b7a97
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Release form signed on 31 July 2024
Adobe PDF - 132.9 KB - SHA512: 9d100e14317c433b8c0d9a2209086f157bf86c70a997451fbb4086d8f950fe398a2cab8e41cf1dc29386497b8946037785645233d72253068f6072483e4e7669
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Release form signed on 15 April 2024
Adobe PDF - 315.7 KB - SHA512: 15a1afba0c454ad92093b7b7d26767e644872990c6f04b6e52dacc0f9160018b2486dfbb634fac651fa310eb7cea81a603480bd7620b6e24449e9826da4f531f
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Release form signed on 9 January 2023
Adobe PDF - 106.5 KB - SHA512: 079df6ea89b65546595d60a7fab35b3fc42367dee43247362a2fa724f886fa2a26351d5734ac83300a59187752582825dfbc4ae9375a4bbe9574bfa37a2303fa
Data
Release form signed on 7 January 2024
Adobe PDF - 93.4 KB - SHA512: 379bc3c817c4758118b55278e010f4458d938ddb6ec7e54261465b85d094b91582f7dde2579039d05888829a526b0f9509ed791886e55edd732c34596d2bf16a
Data
Release form signed on 2 July 2024
Adobe PDF - 94.1 KB - SHA512: 95014c3a6bfb3542e7af995c1df1329d1bd0d27fe8f7a353981cda2b70f46b4c2c7c1c2e15a700c1e45aca3188cc6c26e339b49cd860e40a39dafeaf0ba3e559
Data
Release form signed on 12 June 2024
Jan 17, 2025
Mahr, Dana. 2025. "Data for: Data Diaries: Self-Reported Chronicles on Online Health Platforms and the Challenges for Technology Assessment". Qualitative Data Repository. https://doi.org/10.5064/F6JDLVAL. QDR Main Collection. V1
Project Overview This project explores the ethical, social, and economic implications of online health platforms that promote participatory models of data collection and utilization. These platforms, often heralded for democratizing healthcare, also raise significant concerns about privacy, data commodification, and exploitation. By using qualitati...
Adobe PDF - 194.4 KB - SHA512: fd91f860c5c44321d640d3dacd2033e6e88d30788668af618882f11f0a4e4e6d09376165ead3c3e1f5be4ff07b85abb558285787b775ff124c81038362619053
Documentation
Adobe PDF - 168.4 KB - SHA512: 813472ecf6b5b1620138dc20e30d1c9b3f741dd498f9b2f6c5a0888dec00db78fdb216847979c4899c1b1d5c393ce581704423b3a27beb53cf0bac37a46c6cf2
Documentation
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