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License: Controlled Access

1 to 10 of 36 Results

Data for: Assessing the Usability of a Novel Toolkit for Creating Visual Key Information Pages for Informed Consent for Research Aug 10, 2025 Goldstein, Eliana; Cooksey, Krista; Politi, Mary. 2025. "Data for: Assessing the Usability of a Novel Toolkit for Creating Visual Key Information Pages for Informed Consent for Research". Qualitative Data Repository. https://doi.org/10.5064/F6XJ82VS. QDR Main Collection. V1 Project Overview Federally required key information pages for research informed consent require a condensed summary of information to improve participant understanding, but these pages have not widely incorporated health literacy best practices. We previously developed a visual key information template based on these best practices to improve infor...
Data For: Qualitative Interviews to Engage End-Users to Adapt I CAN PIC to the CARE Tool Employing a User-Centered Approach Aug 7, 2025 Cooksey, Krista; Politi, Mary; Housten, Ashley. 2025. "Data For: Qualitative Interviews to Engage End-Users to Adapt I CAN PIC to the CARE Tool Employing a User-Centered Approach". Qualitative Data Repository. https://doi.org/10.5064/F6SXZFNA. QDR Main Collection. V1 Project Overview People with cancer often experience financial toxicity on top of the burden of having a serious illness which negatively impacts their health and well-being across socioeconomic levels and insurance types. Those from socioeconomically marginalized groups are particularly affected. Financial toxicity is associated with diminished cl...
The Pandemic Journaling Project, Subproject 1, PJP - Immigrant Women in NYC (PJP-IW/NYC) Jul 26, 2025 Wurtz, Heather M.; Mason, Katherine A.; Flores, Andrea; Willen, Sarah S.. 2025. "The Pandemic Journaling Project, Subproject 1, PJP - Immigrant Women in NYC (PJP-IW/NYC)". Qualitative Data Repository. https://doi.org/10.5064/F6XOX6Y3. QDR Main Collection. V1 Project Overview This dataset contains all qualitative and quantitative journaling data collected in “The Pandemic Journaling Project, Subproject 1, PJP - Immigrant Women in NYC” (henceforth PJP-IW/NYC). The Pandemic Journaling Project (PJP) is a combined journaling platform and interdisciplinary, mixed-methods research study developed by anthropol...
Capacity Building Assistance and Quality Improvement for HIV Care in New Orleans, LA Mar 27, 2025 Arnold, Emily; Koester, Kimberly. 2025. "Capacity Building Assistance and Quality Improvement for HIV Care in New Orleans, LA". Qualitative Data Repository. https://doi.org/10.5064/F6MPV4TO. QDR Main Collection. V1 Project Overview Facilities, employees, and patients in health care systems related to human immunodeficiency virus (HIV) care face difficulties when extreme weather events, such as hurricanes in New Orleans, Louisiana (NOLA), become more severe and frequent. By redesigning systems, quality improvement collaboratives (QICs) may be able to mitigate...
Data for: Qualitative Assessment of Proposed Visual Key Information Pages for Informed Consent Feb 17, 2025 Cooksey, Krista; Goldstein, Eliana; Politi, Mary. 2025. "Data for: Qualitative Assessment of Proposed Visual Key Information Pages for Informed Consent". Qualitative Data Repository. https://doi.org/10.5064/F6DDBH8U. QDR Main Collection. V1 Project Overview The 2018 Common Rule revision intended to improve informed consent by recommending a concise key information (KI) section, yet it provided little guidance about how to describe KI. We developed innovative, visual KI templates with attention to health literacy and visual design principles. We explored end users’ attitudes, beliefs,...
Demand for Modern Contraception in Sub-Saharan Africa: New Methods, New Evidence Aug 1, 2024 Ibitoye, Mobolaji; OlaOlorun, Funmilola; Casterline, John B.. 2025. "Demand for Modern Contraception in Sub-Saharan Africa: New Methods, New Evidence". Qualitative Data Repository. https://doi.org/10.5064/F600CMLO. QDR Main Collection. V1 Project Overview West and Central Africa have the highest fertility rates in the world. These high birthrates are largely a function of desired fertility and continued allegiance to large families. Recent survey data on the desired number of children for 41 countries in sub-Saharan Africa (SSA) shows a median value of 4.8 children, with only one-qu...
Looking Back, Looking Forward: Lessons Learned about Prostitution Diversion Programs Jun 27, 2024 Shdaimah, Corey; Franke, Nancy. 2024. "Looking Back, Looking Forward: Lessons Learned about Prostitution Diversion Programs". Qualitative Data Repository. https://doi.org/10.5064/F6F7KQC7. QDR Main Collection. V1 Project Overview The purpose of the study was to learn more about the perspectives of criminal justice stakeholders and graduates in prostitution diversion programs over a decade after its implementation and as a follow up to an ethnographic study conducted from 2011-2014, the data of which is also housed in the QDR database. The objective is to id...
South African COVID-19 Diaries Feb 15, 2024 Jacobs, Nancy J.. 2024. "South African COVID-19 Diaries". Qualitative Data Repository. https://doi.org/10.5064/F6BYXWYG. QDR Main Collection. V1 Project Overview In the week of March 23, 2020 Nancy Jacobs and Lorato Trok assembled a journal-writing team of 18 South African students from under-privileged Black urban and rural communities. Lorato is an author and literacy specialist in South Africa who identified our participants through her literacy networks and coached the students through...
Data for: The Pandemic Journaling Project, Phase One (PJP-1) Feb 15, 2024 Willen, Sarah S.; Mason, Katherine A.. 2024. "Data for: The Pandemic Journaling Project, Phase One (PJP-1)". Qualitative Data Repository. https://doi.org/10.5064/F6PXS9ZK. QDR Main Collection. V1 Project Summary This dataset contains all qualitative and quantitative data collected in the first phase of the Pandemic Journaling Project (PJP). PJP is a combined journaling platform and interdisciplinary, mixed-methods research study developed by two anthropologists, with support from a team of colleagues and students across the social sciences,...
Recovery Experiences in Young Women with Acute Myocardial Infarction Nov 13, 2023 Dreyer, Rachel P.; Pavlo, Anthony J.. 2023. "Recovery Experiences in Young Women with Acute Myocardial Infarction". Qualitative Data Repository. https://doi.org/10.5064/F66R7QMF. QDR Main Collection. V1 Project Overview Readmissions for acute myocardial infarction (AMI) are common, costly, and pose a substantial burden on healthcare resources, yet existing interventions have not consistently reduced readmission rates. Younger women with AMI (≤55 years) are more frequently readmitted over the first year after AMI than younger men, resulting in poor...

Data for: Assessing the Usability of a Novel Toolkit for Creating Visual Key Information Pages for Informed Consent for Research

Aug 10, 2025

Goldstein, Eliana; Cooksey, Krista; Politi, Mary. 2025. "Data for: Assessing the Usability of a Novel Toolkit for Creating Visual Key Information Pages for Informed Consent for Research". Qualitative Data Repository. https://doi.org/10.5064/F6XJ82VS. QDR Main Collection. V1

Project Overview Federally required key information pages for research informed consent require a condensed summary of information to improve participant understanding, but these pages have not widely incorporated health literacy best practices. We previously developed a visual key information template based on these best practices to improve infor...

Data For: Qualitative Interviews to Engage End-Users to Adapt I CAN PIC to the CARE Tool Employing a User-Centered Approach

Aug 7, 2025

Cooksey, Krista; Politi, Mary; Housten, Ashley. 2025. "Data For: Qualitative Interviews to Engage End-Users to Adapt I CAN PIC to the CARE Tool Employing a User-Centered Approach". Qualitative Data Repository. https://doi.org/10.5064/F6SXZFNA. QDR Main Collection. V1

Project Overview People with cancer often experience financial toxicity on top of the burden of having a serious illness which negatively impacts their health and well-being across socioeconomic levels and insurance types. Those from socioeconomically marginalized groups are particularly affected. Financial toxicity is associated with diminished cl...

The Pandemic Journaling Project, Subproject 1, PJP - Immigrant Women in NYC (PJP-IW/NYC)

Jul 26, 2025

Wurtz, Heather M.; Mason, Katherine A.; Flores, Andrea; Willen, Sarah S.. 2025. "The Pandemic Journaling Project, Subproject 1, PJP - Immigrant Women in NYC (PJP-IW/NYC)". Qualitative Data Repository. https://doi.org/10.5064/F6XOX6Y3. QDR Main Collection. V1

Project Overview This dataset contains all qualitative and quantitative journaling data collected in “The Pandemic Journaling Project, Subproject 1, PJP - Immigrant Women in NYC” (henceforth PJP-IW/NYC). The Pandemic Journaling Project (PJP) is a combined journaling platform and interdisciplinary, mixed-methods research study developed by anthropol...

Capacity Building Assistance and Quality Improvement for HIV Care in New Orleans, LA

Mar 27, 2025

Arnold, Emily; Koester, Kimberly. 2025. "Capacity Building Assistance and Quality Improvement for HIV Care in New Orleans, LA". Qualitative Data Repository. https://doi.org/10.5064/F6MPV4TO. QDR Main Collection. V1

Project Overview Facilities, employees, and patients in health care systems related to human immunodeficiency virus (HIV) care face difficulties when extreme weather events, such as hurricanes in New Orleans, Louisiana (NOLA), become more severe and frequent. By redesigning systems, quality improvement collaboratives (QICs) may be able to mitigate...

Data for: Qualitative Assessment of Proposed Visual Key Information Pages for Informed Consent

Feb 17, 2025

Cooksey, Krista; Goldstein, Eliana; Politi, Mary. 2025. "Data for: Qualitative Assessment of Proposed Visual Key Information Pages for Informed Consent". Qualitative Data Repository. https://doi.org/10.5064/F6DDBH8U. QDR Main Collection. V1

Project Overview The 2018 Common Rule revision intended to improve informed consent by recommending a concise key information (KI) section, yet it provided little guidance about how to describe KI. We developed innovative, visual KI templates with attention to health literacy and visual design principles. We explored end users’ attitudes, beliefs,...

Demand for Modern Contraception in Sub-Saharan Africa: New Methods, New Evidence

Aug 1, 2024

Ibitoye, Mobolaji; OlaOlorun, Funmilola; Casterline, John B.. 2025. "Demand for Modern Contraception in Sub-Saharan Africa: New Methods, New Evidence". Qualitative Data Repository. https://doi.org/10.5064/F600CMLO. QDR Main Collection. V1

Project Overview West and Central Africa have the highest fertility rates in the world. These high birthrates are largely a function of desired fertility and continued allegiance to large families. Recent survey data on the desired number of children for 41 countries in sub-Saharan Africa (SSA) shows a median value of 4.8 children, with only one-qu...

Looking Back, Looking Forward: Lessons Learned about Prostitution Diversion Programs

Jun 27, 2024

Shdaimah, Corey; Franke, Nancy. 2024. "Looking Back, Looking Forward: Lessons Learned about Prostitution Diversion Programs". Qualitative Data Repository. https://doi.org/10.5064/F6F7KQC7. QDR Main Collection. V1

Project Overview The purpose of the study was to learn more about the perspectives of criminal justice stakeholders and graduates in prostitution diversion programs over a decade after its implementation and as a follow up to an ethnographic study conducted from 2011-2014, the data of which is also housed in the QDR database. The objective is to id...

South African COVID-19 Diaries

Feb 15, 2024

Jacobs, Nancy J.. 2024. "South African COVID-19 Diaries". Qualitative Data Repository. https://doi.org/10.5064/F6BYXWYG. QDR Main Collection. V1

Project Overview In the week of March 23, 2020 Nancy Jacobs and Lorato Trok assembled a journal-writing team of 18 South African students from under-privileged Black urban and rural communities. Lorato is an author and literacy specialist in South Africa who identified our participants through her literacy networks and coached the students through...

Data for: The Pandemic Journaling Project, Phase One (PJP-1)

Feb 15, 2024

Willen, Sarah S.; Mason, Katherine A.. 2024. "Data for: The Pandemic Journaling Project, Phase One (PJP-1)". Qualitative Data Repository. https://doi.org/10.5064/F6PXS9ZK. QDR Main Collection. V1

Project Summary This dataset contains all qualitative and quantitative data collected in the first phase of the Pandemic Journaling Project (PJP). PJP is a combined journaling platform and interdisciplinary, mixed-methods research study developed by two anthropologists, with support from a team of colleagues and students across the social sciences,...

Recovery Experiences in Young Women with Acute Myocardial Infarction

Nov 13, 2023

Dreyer, Rachel P.; Pavlo, Anthony J.. 2023. "Recovery Experiences in Young Women with Acute Myocardial Infarction". Qualitative Data Repository. https://doi.org/10.5064/F66R7QMF. QDR Main Collection. V1

Project Overview Readmissions for acute myocardial infarction (AMI) are common, costly, and pose a substantial burden on healthcare resources, yet existing interventions have not consistently reduced readmission rates. Younger women with AMI (≤55 years) are more frequently readmitted over the first year after AMI than younger men, resulting in poor...

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