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Adobe PDF - 441.4 KB - SHA512: 99e00d4c2b18e9aa1b73a65ad3e917f23b739c643a8bc4e7f857f6275ab188ad7dd0d4232011aa882080fbd4a373935ab1a3af46ed2ea16d6821d1cf624bfbbe
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Adobe PDF - 510.8 KB - SHA512: ffbb6ddade1110fbc84fe75d4228ddff3def395ead25041d6f36eab31ce1a4c0298a04fa95b387fc6cccbbc39fb3f7045d9f5561ecb0d373f4d9cdc92afc9212
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Adobe PDF - 558.8 KB - SHA512: f329051f7dec9d0d1bf64d87f4a11d1cc5fc3633d74a1caffd39d45525b4d00e8e5f558518f682ca847cab9698fc8fbc33153801be6919a1f15e15802e8a7d1c
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Adobe PDF - 244.1 KB - SHA512: fde2705a9ad9fb6061b3854afee0c4f2bde46b6cb68ac1f9a9970559cb11623c44cad3a106db1057a51f34149405689861c596ee0f0b7045b3ee6add3a5195ff
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Adobe PDF - 169.6 KB - SHA512: 548e06e112417da8668daac1370a6bb206152aec115c925cd36b0e2963df1699faeb6a2b66e7ae7262b20172306fa2c8e5889fb07f44c69e94ff663acce24b1a
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Consent Form
Adobe PDF - 165.8 KB - SHA512: 339c33cfc3e52150cda84ead168824d844cec3e887a26bd291c584faccf3739473f8be87e666326f439b18a237b1f4e9773bb38ab907fbea4bcaab1147001049
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Study Information
Adobe PDF - 219.6 KB - SHA512: ffe035b13e4b1dccfec6e8b35dc8d5aaf408ae5a50ec07d8307d574a91aaaac570a509dcacb1f17e3b8c35cc0ee6bb1ddf2d6c939b3cd4486e360144f7a2328a
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Interview Schedule
Adobe PDF - 282.7 KB - SHA512: 1383e477a90ce9c462210e56d17637159ceec646a0198a93bbdc2e04a2a040b9d513624d4d6903960aaeffa2c81e097ffae5169eb54f685502744ace03e5bd30
Documentation
Participant Information Sheet
Mack, Jennifer. 2021. "Data for: Barriers to Hospice and Palliative Care Utilization Among Adolescent and Young Adult Cancer Patients Living in Poverty". Qualitative Data Repository. https://doi.org/10.5064/F6LBYMQO. Palliative Care Research Cooperative QDR. V2
Project Summary Background: Adolescents and young adults (AYAs; aged 15-39 years) with cancer frequently receive intensive measures at the end of life (EoL), but the perspectives of AYAs and their family members on barriers to optimal EoL care are not well understood. Methods: We conducted qualitative interviews with 28 bereaved caregivers of AYAs...
Adobe PDF - 134.2 KB - SHA512: 6743fae41dbfc18afad693ef4f7e484e3517c3c0d3524574915fe7a7e77003cbd4ab516f8c58452541522310f36aa60243976f33836521ea67eb09db1b72771c
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