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1 to 10 of 96 Results

Data for: Assessing the Usability of a Novel Toolkit for Creating Visual Key Information Pages for Informed Consent for Research Aug 10, 2025 Goldstein, Eliana; Cooksey, Krista; Politi, Mary. 2025. "Data for: Assessing the Usability of a Novel Toolkit for Creating Visual Key Information Pages for Informed Consent for Research". Qualitative Data Repository. https://doi.org/10.5064/F6XJ82VS. QDR Main Collection. V1 Project Overview Federally required key information pages for research informed consent require a condensed summary of information to improve participant understanding, but these pages have not widely incorporated health literacy best practices. We previously developed a visual key information template based on these best practices to improve infor...
Data For: Qualitative Interviews to Engage End-Users to Adapt I CAN PIC to the CARE Tool Employing a User-Centered Approach Aug 7, 2025 Cooksey, Krista; Politi, Mary; Housten, Ashley. 2025. "Data For: Qualitative Interviews to Engage End-Users to Adapt I CAN PIC to the CARE Tool Employing a User-Centered Approach". Qualitative Data Repository. https://doi.org/10.5064/F6SXZFNA. QDR Main Collection. V1 Project Overview People with cancer often experience financial toxicity on top of the burden of having a serious illness which negatively impacts their health and well-being across socioeconomic levels and insurance types. Those from socioeconomically marginalized groups are particularly affected. Financial toxicity is associated with diminished cl...
Data for: COVID Diaries, Part II: U.S. Media Response to COVID Vaccination Program, December 2020 to September 2021 Aug 7, 2025 Moore, Avalon S.; Vitu, Bridget; Fraizer-Bisner, Felicia; Williams, Peter J.; Chun, Madeline; Archer, Claire; Gouda, Abdelrhman; Vallabh, Akhil; Wilens, Alixandra; Pittenger, Christopher; Pushkarskaya, Helen. 2025. "Data for: COVID Diaries, Part II: U.S. Media Response to COVID Vaccination Program, December 2020 to September 2021". Qualitative Data Repository. https://doi.org/10.5064/F63IIXNY. QDR Main Collection. V1 Project Overview This portion of the COVID DIARIES project provides full bibliographic information (including original and permanent links) to media items related to the COVID-19 vaccination program, published on the official websites of 20 major U.S. news outlets, including television networks, magazines, and newspapers. It spans the period from D...
The Pandemic Journaling Project, Subproject 1, PJP - Immigrant Women in NYC (PJP-IW/NYC) Jul 26, 2025 Wurtz, Heather M.; Mason, Katherine A.; Flores, Andrea; Willen, Sarah S.. 2025. "The Pandemic Journaling Project, Subproject 1, PJP - Immigrant Women in NYC (PJP-IW/NYC)". Qualitative Data Repository. https://doi.org/10.5064/F6XOX6Y3. QDR Main Collection. V1 Project Overview This dataset contains all qualitative and quantitative journaling data collected in “The Pandemic Journaling Project, Subproject 1, PJP - Immigrant Women in NYC” (henceforth PJP-IW/NYC). The Pandemic Journaling Project (PJP) is a combined journaling platform and interdisciplinary, mixed-methods research study developed by anthropol...
Data for: COVID Diaries, Part I: State Response to COVID Vaccination Program, December 2020 to September 2021 Jul 22, 2025 Moore, Avalon; Bridget, Vitu; Fraizer-Bisner, Felicia; Williams, Peter J.; Van Der Merwe, Lucy; Gouda, Abdelrhman; Pittenger, Christopher; Pushkarskaya, Helen. 2025. "Data for: COVID Diaries, Part I: State Response to COVID Vaccination Program, December 2020 to September 2021". Qualitative Data Repository. https://doi.org/10.5064/F6G2PETF. QDR Main Collection. V1 Project Overview This dataset comprises 5,223 unique documents published online on the official websites of governors’ or health departments’ offices across all U.S. states in relation to the COVID-19 vaccination program. The dataset covers the timeframe from December 2020, when states began preparing for Phase 1a of the COVID-19 vaccination alloca...
Data for: Socializing Policy Feedback: The Persistent Effects of Adolescent Policy Program Use on Political Behaviors and Attitudes in Adulthood Jun 26, 2025 Micatka, Nathan K.. 2025. "Data for: Socializing Policy Feedback: The Persistent Effects of Adolescent Policy Program Use on Political Behaviors and Attitudes in Adulthood". Qualitative Data Repository. https://doi.org/10.5064/F6HYTYIJ. QDR Main Collection. V1 Project Overview Adolescence is a critical period for political development. Different political attitudes, political behaviors, and political interests tend to develop during adolescence and persist into adulthood. Welfare participation is associated with lower political participation and pessimistic views of politics among adults, yet we have not...
Data for: Preferences for on-demand/intermittent/event-driven and long-acting injectable HIV pre-exposure prophylaxis (PrEP) among HIV-negative Black gay, bisexual, and other sexual minority men in the United States: A qualitative study Jun 9, 2025 Ogunbajo, Adedotun; Hickson, DeMarc. 2025. "Data for: Preferences for on-demand/intermittent/event-driven and long-acting injectable HIV pre-exposure prophylaxis (PrEP) among HIV-negative Black gay, bisexual, and other sexual minority men in the United States: A qualitative study". Qualitative Data Repository. https://doi.org/10.5064/F6AW0DHS. QDR Main Collection. V1 Project Overview Black sexual minority men (SMM) are disproportionately affected by HIV and pre-exposure prophylaxis (PrEP) is a medication that reduces HIV acquisition. There is a gap in our understanding of the acceptability of and preference for on-demand and long-acting injectable (LAI) PrEP among PrEP-eligible Black SMM. This study aimed to ex...
Data for: Understanding Poverty, Food Insecurity, and Social Determinants’ Impact on Health Conditions: A Reflective, Experiential Approach for Medical Students May 27, 2025 Chrisman-Khawam, Leanne. 2025. "Data for: Understanding Poverty, Food Insecurity, and Social Determinants’ Impact on Health Conditions: A Reflective, Experiential Approach for Medical Students". Qualitative Data Repository. https://doi.org/10.5064/F65U77YU. QDR Main Collection. V1 Project Overview This project is designed to bridge the gap in medical education by integrating the SNAP Challenge, an experiential learning exercise where participants live on the average Supplemental Nutrition Assistance Program (SNAP) budget—about $4–5 per day—to understand the realities of food insecurity. Most medical students come from afflue...
Data for: How Pre-Medical Scribing Shapes Medical Student Experience and Professional Identity May 27, 2025 Chrisman-Khawam, Leanne. 2025. "Data for: How Pre-Medical Scribing Shapes Medical Student Experience and Professional Identity". Qualitative Data Repository. https://doi.org/10.5064/F6LUHAPL. QDR Main Collection. V1 Project Overview This project evaluates the impact of pre-medical experiences, particularly medical scribing and assisting, on medical students’ learning, professional identity formation, and overall success. As medical knowledge rapidly expands, students face increasing pressure to develop competency beyond standardized test performance. Tradition...
Expanding Models of Delivery for Online Spiritual Care Apr 2, 2025 Bezabih, Alemitu Mequanint; Smith, C. Estelle. 2025. "Expanding Models of Delivery for Online Spiritual Care". Qualitative Data Repository. https://doi.org/10.5064/F6R7J9HL. QDR Main Collection. V1 Project Overview Despite a growing need for spiritual care in the US, it is often under-served, inaccessible, or misunderstood, while almost no prior research in the fields of Computer-Supported Cooperative Work and Human-Computer Interaction (CSCW/HCI) has engaged with professional chaplains and spiritual care providers. This interdisciplinary stu...

Data for: Assessing the Usability of a Novel Toolkit for Creating Visual Key Information Pages for Informed Consent for Research

Aug 10, 2025

Goldstein, Eliana; Cooksey, Krista; Politi, Mary. 2025. "Data for: Assessing the Usability of a Novel Toolkit for Creating Visual Key Information Pages for Informed Consent for Research". Qualitative Data Repository. https://doi.org/10.5064/F6XJ82VS. QDR Main Collection. V1

Project Overview Federally required key information pages for research informed consent require a condensed summary of information to improve participant understanding, but these pages have not widely incorporated health literacy best practices. We previously developed a visual key information template based on these best practices to improve infor...

Data For: Qualitative Interviews to Engage End-Users to Adapt I CAN PIC to the CARE Tool Employing a User-Centered Approach

Aug 7, 2025

Cooksey, Krista; Politi, Mary; Housten, Ashley. 2025. "Data For: Qualitative Interviews to Engage End-Users to Adapt I CAN PIC to the CARE Tool Employing a User-Centered Approach". Qualitative Data Repository. https://doi.org/10.5064/F6SXZFNA. QDR Main Collection. V1

Project Overview People with cancer often experience financial toxicity on top of the burden of having a serious illness which negatively impacts their health and well-being across socioeconomic levels and insurance types. Those from socioeconomically marginalized groups are particularly affected. Financial toxicity is associated with diminished cl...

Data for: COVID Diaries, Part II: U.S. Media Response to COVID Vaccination Program, December 2020 to September 2021

Aug 7, 2025

Moore, Avalon S.; Vitu, Bridget; Fraizer-Bisner, Felicia; Williams, Peter J.; Chun, Madeline; Archer, Claire; Gouda, Abdelrhman; Vallabh, Akhil; Wilens, Alixandra; Pittenger, Christopher; Pushkarskaya, Helen. 2025. "Data for: COVID Diaries, Part II: U.S. Media Response to COVID Vaccination Program, December 2020 to September 2021". Qualitative Data Repository. https://doi.org/10.5064/F63IIXNY. QDR Main Collection. V1

Project Overview This portion of the COVID DIARIES project provides full bibliographic information (including original and permanent links) to media items related to the COVID-19 vaccination program, published on the official websites of 20 major U.S. news outlets, including television networks, magazines, and newspapers. It spans the period from D...

The Pandemic Journaling Project, Subproject 1, PJP - Immigrant Women in NYC (PJP-IW/NYC)

Jul 26, 2025

Wurtz, Heather M.; Mason, Katherine A.; Flores, Andrea; Willen, Sarah S.. 2025. "The Pandemic Journaling Project, Subproject 1, PJP - Immigrant Women in NYC (PJP-IW/NYC)". Qualitative Data Repository. https://doi.org/10.5064/F6XOX6Y3. QDR Main Collection. V1

Project Overview This dataset contains all qualitative and quantitative journaling data collected in “The Pandemic Journaling Project, Subproject 1, PJP - Immigrant Women in NYC” (henceforth PJP-IW/NYC). The Pandemic Journaling Project (PJP) is a combined journaling platform and interdisciplinary, mixed-methods research study developed by anthropol...

Data for: COVID Diaries, Part I: State Response to COVID Vaccination Program, December 2020 to September 2021

Jul 22, 2025

Moore, Avalon; Bridget, Vitu; Fraizer-Bisner, Felicia; Williams, Peter J.; Van Der Merwe, Lucy; Gouda, Abdelrhman; Pittenger, Christopher; Pushkarskaya, Helen. 2025. "Data for: COVID Diaries, Part I: State Response to COVID Vaccination Program, December 2020 to September 2021". Qualitative Data Repository. https://doi.org/10.5064/F6G2PETF. QDR Main Collection. V1

Project Overview This dataset comprises 5,223 unique documents published online on the official websites of governors’ or health departments’ offices across all U.S. states in relation to the COVID-19 vaccination program. The dataset covers the timeframe from December 2020, when states began preparing for Phase 1a of the COVID-19 vaccination alloca...

Data for: Socializing Policy Feedback: The Persistent Effects of Adolescent Policy Program Use on Political Behaviors and Attitudes in Adulthood

Jun 26, 2025

Micatka, Nathan K.. 2025. "Data for: Socializing Policy Feedback: The Persistent Effects of Adolescent Policy Program Use on Political Behaviors and Attitudes in Adulthood". Qualitative Data Repository. https://doi.org/10.5064/F6HYTYIJ. QDR Main Collection. V1

Project Overview Adolescence is a critical period for political development. Different political attitudes, political behaviors, and political interests tend to develop during adolescence and persist into adulthood. Welfare participation is associated with lower political participation and pessimistic views of politics among adults, yet we have not...

Data for: Preferences for on-demand/intermittent/event-driven and long-acting injectable HIV pre-exposure prophylaxis (PrEP) among HIV-negative Black gay, bisexual, and other sexual minority men in the United States: A qualitative study

Jun 9, 2025

Ogunbajo, Adedotun; Hickson, DeMarc. 2025. "Data for: Preferences for on-demand/intermittent/event-driven and long-acting injectable HIV pre-exposure prophylaxis (PrEP) among HIV-negative Black gay, bisexual, and other sexual minority men in the United States: A qualitative study". Qualitative Data Repository. https://doi.org/10.5064/F6AW0DHS. QDR Main Collection. V1

Project Overview Black sexual minority men (SMM) are disproportionately affected by HIV and pre-exposure prophylaxis (PrEP) is a medication that reduces HIV acquisition. There is a gap in our understanding of the acceptability of and preference for on-demand and long-acting injectable (LAI) PrEP among PrEP-eligible Black SMM. This study aimed to ex...

Data for: Understanding Poverty, Food Insecurity, and Social Determinants’ Impact on Health Conditions: A Reflective, Experiential Approach for Medical Students

May 27, 2025

Chrisman-Khawam, Leanne. 2025. "Data for: Understanding Poverty, Food Insecurity, and Social Determinants’ Impact on Health Conditions: A Reflective, Experiential Approach for Medical Students". Qualitative Data Repository. https://doi.org/10.5064/F65U77YU. QDR Main Collection. V1

Project Overview This project is designed to bridge the gap in medical education by integrating the SNAP Challenge, an experiential learning exercise where participants live on the average Supplemental Nutrition Assistance Program (SNAP) budget—about $4–5 per day—to understand the realities of food insecurity. Most medical students come from afflue...

Data for: How Pre-Medical Scribing Shapes Medical Student Experience and Professional Identity

May 27, 2025

Chrisman-Khawam, Leanne. 2025. "Data for: How Pre-Medical Scribing Shapes Medical Student Experience and Professional Identity". Qualitative Data Repository. https://doi.org/10.5064/F6LUHAPL. QDR Main Collection. V1

Project Overview This project evaluates the impact of pre-medical experiences, particularly medical scribing and assisting, on medical students’ learning, professional identity formation, and overall success. As medical knowledge rapidly expands, students face increasing pressure to develop competency beyond standardized test performance. Tradition...

Expanding Models of Delivery for Online Spiritual Care

Apr 2, 2025

Bezabih, Alemitu Mequanint; Smith, C. Estelle. 2025. "Expanding Models of Delivery for Online Spiritual Care". Qualitative Data Repository. https://doi.org/10.5064/F6R7J9HL. QDR Main Collection. V1

Project Overview Despite a growing need for spiritual care in the US, it is often under-served, inaccessible, or misunderstood, while almost no prior research in the fields of Computer-Supported Cooperative Work and Human-Computer Interaction (CSCW/HCI) has engaged with professional chaplains and spiritual care providers. This interdisciplinary stu...

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