21 to 30 of 36 Results
Izumi, Seiko. 2023. "Experiences of Serious Illness Conversations (SICs) to Drive Health Equity in Serious Illness Care". Qualitative Data Repository. https://doi.org/10.5064/F6YCW448. Palliative Care Research Cooperative QDR. V1
Project Overview The primary purpose of this study is to describe the experience with and perception about serious illness conversations (SICs) from the perspective of patients from underserved minoritized groups. Secondary goal is to identify structure and contents that make SICs accessible and acceptable by patients from underserved minoritized g...
|
Schell, Jane; Ernecoff, Natalie. 2023. "Data for: Building Evidence for a Concurrent Hospice and Dialysis Program for Terminal Patients with End-Stage Renal Disease (ESRD)". Qualitative Data Repository. https://doi.org/10.5064/F6DQNQWP. Palliative Care Research Cooperative QDR. V1
Project Overview In this study, we aimed to understand patient, family caregiver, clinician, and administrator perspectives on barriers and facilitators to implementing concurrent hospice-dialysis in diverse settings. To this end, we conducted formative interviews with patients, family caregivers, clinicians, and administrators to assess the feasib...
|
Mar 28, 2023
Young, Scott W. H.. 2023. "Practitioner Perspectives on the Values and Ethics of Library Assessment". Qualitative Data Repository. https://doi.org/10.5064/F6ORSLQF. QDR Main Collection. V1
Project Summary This project asks: “How can library assessment be practiced ethically?” It includes data from a survey and a set of individual interviews. The survey targeted library assessment practitioners across North America, asking respondents to share the values that are relevant for their work. The survey data were analyzed via grounded theo...
|
Reb, Anne. 2023. "Data for: Conquer Fear SUPPORT: A Psychosocial Intervention in Patients with Advanced Cancer". Qualitative Data Repository. https://doi.org/10.5064/F6FTJ1HU. Palliative Care Research Cooperative QDR. V1
Project Overview Approximately 49% of cancer survivors overall and up to 70% of vulnerable groups experience moderate to high levels of fear of cancer progression or recurrence (FOP). Recent data suggest that FOP is an even more pressing concern in advanced cancer. Patients with FOP have intrusive thoughts about cancer, unhelpful coping behaviors,...
|
Feb 1, 2023
Avery, Rosemary J; Byrne, Sahara; Dorf, Michael C; Greiner Safi, Amelia; Kalaji, Motasem; Mathios, Alan D; Niederdeppe, Jeff; Porticella, Norman. 2023. "Youth and Adult Responses to E-cigarette Warning Messages - Focus Group Transcripts". Qualitative Data Repository. https://doi.org/10.5064/F6LQGCLG. QDR Main Collection. V1
Project Overview The broader project explored response to nuanced messages, described in the study as warnings, that communicate information on the toxicity of ingredients in e-cigarettes, potential health risks, addiction to nicotine, and the uncertainty of the science regarding health effects of using these products. Youth (N=32) and adult (N=37)...
|
Kelleher, Sarah A.; Fisher, Hannah M.; Winger, Joseph G.; Miller, Shannon N.; Amaden, Grace H.; Somers, Tamara J.; Colloca, Luana; Uronis, Hope E.; Keefe, Francis J.. 2022. "Pilot Testing a Virtual Reality Protocol for Improving Pain and Pain-Related Distress in Patients with Advanced Stage Colorectal Cancer". Qualitative Data Repository. https://doi.org/10.5064/F6NSP4U5. Palliative Care Research Cooperative QDR. V1
Project Summary This study was done to test the feasibility, acceptability, safety, and impact of exposing patients to a single 30-minute virtual reality underwater/sea environment (called VR Blue) for reducing pain and pain-related symptoms in patients with advanced stage colorectal cancer. VR Blue is an immersive computer-generated environment fe...
|
Sep 7, 2022
Haney, Lynne. 2022. "Data for: Child Support Adjudication: New York, California and Florida, 2015-2019". Qualitative Data Repository. https://doi.org/10.5064/F6AQGERV. QDR Main Collection. V1
Project Overview Prisons of Debt: The Afterlives of Incarcerated Fathers examines the criminalization of child support and its consequences for indebted fathers and their families. It analyzes the intersections of two of the largest, most punitive state systems in the U.S. &endash; the child support and criminal justice system &endash; and document...
|
DeCamp, Matt. 2022. "Ethical Challenges When Engaging Patients and Families in End-of-Life and Palliative Care Research". Qualitative Data Repository. https://doi.org/10.5064/F6WKR6ED. Palliative Care Research Cooperative QDR. V1
Project Overview Background: Delivering high quality, patient- and family-centered care depends upon high quality end-of-life and palliative care (EOLPC) research. Engaging patients and families as advisors, partners, or co-investigators throughout the research lifecycle is widely regarded as critical to ensuring high quality research. Engagement i...
|
Lum, Hillary. 2022. "Understanding advance care planning in patients and care partners living with Parkinson’s disease". Qualitative Data Repository. https://doi.org/10.5064/F6GZGCJB. Palliative Care Research Cooperative QDR. V1
Project Summary Objective: Advance care planning (ACP) is a core quality measure in caring for individuals with Parkinson disease (PD) and there are no best practice standards for how to incorporate ACP into PD care. This study describes patient and care partner perspectives on ACP to inform a patient- and care partner-centered framework for clinic...
|
Mar 17, 2022
Mueller, Jennifer; Kirstein, Marielle; VandeVusse, Alicia; Lindberg, Laura. 2022. "Data for: Improving Abortion Underreporting in the United States: A Cognitive Interview Study". Qualitative Data Repository. https://doi.org/10.5064/F6V5VGX3. QDR Main Collection. V1
Project Summary: The purpose of this study was to inform experimental testing of new approaches for measuring abortion in surveys in the United States, by improving our understanding of how women interpret and respond to survey items asking them to report their abortion history. Using cognitive interviews, we developed, tested, and evaluated variou...
|
