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Adobe PDF - 315.7 KB - SHA512: 15a1afba0c454ad92093b7b7d26767e644872990c6f04b6e52dacc0f9160018b2486dfbb634fac651fa310eb7cea81a603480bd7620b6e24449e9826da4f531f
Data
Release form signed on 9 January 2023
Adobe PDF - 106.5 KB - SHA512: 079df6ea89b65546595d60a7fab35b3fc42367dee43247362a2fa724f886fa2a26351d5734ac83300a59187752582825dfbc4ae9375a4bbe9574bfa37a2303fa
Data
Release form signed on 7 January 2024
Adobe PDF - 93.4 KB - SHA512: 379bc3c817c4758118b55278e010f4458d938ddb6ec7e54261465b85d094b91582f7dde2579039d05888829a526b0f9509ed791886e55edd732c34596d2bf16a
Data
Release form signed on 2 July 2024
Adobe PDF - 94.1 KB - SHA512: 95014c3a6bfb3542e7af995c1df1329d1bd0d27fe8f7a353981cda2b70f46b4c2c7c1c2e15a700c1e45aca3188cc6c26e339b49cd860e40a39dafeaf0ba3e559
Data
Release form signed on 12 June 2024
Adobe PDF - 194.4 KB - SHA512: fd91f860c5c44321d640d3dacd2033e6e88d30788668af618882f11f0a4e4e6d09376165ead3c3e1f5be4ff07b85abb558285787b775ff124c81038362619053
Documentation
Adobe PDF - 168.4 KB - SHA512: 813472ecf6b5b1620138dc20e30d1c9b3f741dd498f9b2f6c5a0888dec00db78fdb216847979c4899c1b1d5c393ce581704423b3a27beb53cf0bac37a46c6cf2
Documentation
Adobe PDF - 174.6 KB - SHA512: 4756b25660904d9bdef102d809f6134a943a2f3d1d7ce505eb7f93c9727a427f0e4838c39585927332aa827946a9e08d094193ac081e9b6cd3e467d742dde64e
Data
This data file presents insights from interviews conducted by Dana Mahr with participants from March 2020 to October 2021. It explores the experiences of 20 individuals with various chronic conditions, focusing on their feelings of empowerment, privacy concerns, ethical considerations, and the personal significance ("lifeworld-value") of their cont...
Adobe PDF - 93.2 KB - SHA512: 7af68cbb221b1014e5440d4fdb62e3b84c5b785172ecbbb25626a8183acd7f04bd69f618be130eedcfcbb08f4fce757ccd74114598d4447b17592c32681a35c6
Documentation
This file represents a table derived from the coding process, summarizing key themes across participants’ experiences with data sharing on a health platform. It outlines each participant’s demographics, sense of empowerment, views on collaborative research, data privacy concerns, perceived impact, ethical considerations, and the personal significan...
Plain Text - 5.5 KB - SHA512: 6f790ece965a7d0109d5538fc4bbc1436f154f941020b28b1efe301d767b17cc3ee1c133fd30254473e2ad0ae54ab7e17278c53a20a9aee7adfcbbaac8ee7efe
Documentation
Adobe PDF - 208.8 KB - SHA512: b5fd54dccc2127f75574acdaeed1082161431c407648842789da0eaf561c41d5641cc9381961d8edb2b6ca9707e19ebbfd5246d03e15abb013c84d0bf92bc358
CodeDocumentation
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