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License: Controlled Access

11 to 20 of 33 Results

Data for: "What’s Wrong with Digital Stewardship: Evaluating the Organization of Digital Preservation Programs from Practitioners’ Perspectives" Nov 1, 2023 Steeves, Vicky; Peltzman, Shira; Kim, Julia; Griesinger, Peggy; Blumenthal, Karl-Rainer. 2020. "Data for: "What’s Wrong with Digital Stewardship: Evaluating the Organization of Digital Preservation Programs from Practitioners’ Perspectives"". Qualitative Data Repository. https://doi.org/10.5064/F6DJRPLK. QDR Main Collection. V2 Project Overview The National Digital Stewardship Alliance surveyed practitioners in 2012 and again in 2017 to gauge, among other things, how satisfied they were with their organizations’ digital preservation function. This study seeks to understand what causes the high and rising levels of dissatisfaction that practitioners reported. We interviewe...
Data for: Barriers to Hospice and Palliative Care Utilization Among Adolescent and Young Adult Cancer Patients Living in Poverty Nov 1, 2023 - Palliative Care Research Cooperative QDR Mack, Jennifer. 2021. "Data for: Barriers to Hospice and Palliative Care Utilization Among Adolescent and Young Adult Cancer Patients Living in Poverty". Qualitative Data Repository. https://doi.org/10.5064/F6LBYMQO. Palliative Care Research Cooperative QDR. V2 Project Summary Background: Adolescents and young adults (AYAs; aged 15-39 years) with cancer frequently receive intensive measures at the end of life (EoL), but the perspectives of AYAs and their family members on barriers to optimal EoL care are not well understood. Methods: We conducted qualitative interviews with 28 bereaved caregivers of AYAs...
Translational Research Group: Ebola 100 Project Nov 1, 2023 Fosher, Kerry. 2020. "Translational Research Group: Ebola 100 Project". Qualitative Data Repository. https://doi.org/10.5064/F68PQFS8. QDR Main Collection. V2 Project Summary This project was developed to contribute military voices to the larger Ebola 100 Project, which was run by a consortium of individuals and institutions and had the goal of creating a public archive of interviews with individuals involved in the West Africa Ebola outbreak of 2014-2015. Data consist of 8 transcripts of semi-structured...
Data for: “I could not bear it”: Perceptions of Chronic Pain among Somali Pastoralists in Ethiopia. A Qualitative Study Oct 30, 2023 Baum, Eleonore; Abdi, Sied; Arab Abdilahi, Roda. 2023. "Data for: “I could not bear it”: Perceptions of Chronic Pain among Somali Pastoralists in Ethiopia. A Qualitative Study". Qualitative Data Repository. https://doi.org/10.5064/F6N2GOC9. QDR Main Collection. V1 Project Overview Pain is a major public health problem in the Global South, particularly among marginalized communities, such as Somali pastoralists. Yet, the topic of chronic pain has not yet been comprehensively studied in Sub-Saharan Africa, specifically in the Somali region of Ethiopia, formally known as Somali Regional State (SRS). Therefore,...
Data for: Mental Health and Access to Care in the Montagnard Migrant Community: Examining Perspectives across Four Generations in North Carolina Oct 16, 2023 McGinley, John; Ksor, Risuin; Bush, Catherine. 2023. "Data for: Mental Health and Access to Care in the Montagnard Migrant Community: Examining Perspectives across Four Generations in North Carolina". Qualitative Data Repository. https://doi.org/10.5064/F6XFC4RG. QDR Main Collection. V2 Project Overview The “Montagnards” (“mountain people” in the French language) represent a diverse array of cultures originating in the highlands of Vietnam. Largely isolated farmers or hunter-gather communities, the Montagnards were recruited by, and fought with, the American Special Forces throughout the Vietnam War. When the war ended with the fa...
Qualitative Data from the Feasibility Assessment of a Traumatic Brain Injury Predictive Modeling Tool Oct 11, 2023 O'Leary, Paige. 2023. "Qualitative Data from the Feasibility Assessment of a Traumatic Brain Injury Predictive Modeling Tool". Qualitative Data Repository. https://doi.org/10.5064/F6AALALY. QDR Main Collection. V1 Project Overview The purpose of this study was to test the feasibility of implementing a traumatic brain injury (TBI) prognostic model as a clinical decision support tool at Kilimanjaro Christian Medical Center (KCMC) and amongst Duke-affiliated healthcare providers. Our prognostic model is a statistical tool that uses clinical information to predi...
Data for: The Bystander Affect Detection (BAD) Dataset for Failure Detection in HRI Sep 25, 2023 Bremers, Alexandra; Fang, Xuanyu; Friedman, Natalie; Ju, Wendy. 2023. "Data for: The Bystander Affect Detection (BAD) Dataset for Failure Detection in HRI". Qualitative Data Repository. https://doi.org/10.5064/F6TAWBGS. QDR Main Collection. V1 Project Overview For a robot to repair its own error, it must first know it has made a mistake. One way that people detect errors is from the implicit reactions from bystanders – their confusion, smirks, or giggles clue us in that something unexpected occurred. To enable robots to detect and act on bystander responses to task failures, we developed...
Experiences of Serious Illness Conversations (SICs) to Drive Health Equity in Serious Illness Care Jul 28, 2023 - Palliative Care Research Cooperative QDR Izumi, Seiko. 2023. "Experiences of Serious Illness Conversations (SICs) to Drive Health Equity in Serious Illness Care". Qualitative Data Repository. https://doi.org/10.5064/F6YCW448. Palliative Care Research Cooperative QDR. V1 Project Overview The primary purpose of this study is to describe the experience with and perception about serious illness conversations (SICs) from the perspective of patients from underserved minoritized groups. Secondary goal is to identify structure and contents that make SICs accessible and acceptable by patients from underserved minoritized g...
Data for: Building Evidence for a Concurrent Hospice and Dialysis Program for Terminal Patients with End-Stage Renal Disease (ESRD) Jun 27, 2023 - Palliative Care Research Cooperative QDR Schell, Jane; Ernecoff, Natalie. 2023. "Data for: Building Evidence for a Concurrent Hospice and Dialysis Program for Terminal Patients with End-Stage Renal Disease (ESRD)". Qualitative Data Repository. https://doi.org/10.5064/F6DQNQWP. Palliative Care Research Cooperative QDR. V1 Project Overview In this study, we aimed to understand patient, family caregiver, clinician, and administrator perspectives on barriers and facilitators to implementing concurrent hospice-dialysis in diverse settings. To this end, we conducted formative interviews with patients, family caregivers, clinicians, and administrators to assess the feasib...
Practitioner Perspectives on the Values and Ethics of Library Assessment Mar 28, 2023 Young, Scott W. H.. 2023. "Practitioner Perspectives on the Values and Ethics of Library Assessment". Qualitative Data Repository. https://doi.org/10.5064/F6ORSLQF. QDR Main Collection. V1 Project Summary This project asks: “How can library assessment be practiced ethically?” It includes data from a survey and a set of individual interviews. The survey targeted library assessment practitioners across North America, asking respondents to share the values that are relevant for their work. The survey data were analyzed via grounded theo...

Data for: "What’s Wrong with Digital Stewardship: Evaluating the Organization of Digital Preservation Programs from Practitioners’ Perspectives"

Nov 1, 2023

Steeves, Vicky; Peltzman, Shira; Kim, Julia; Griesinger, Peggy; Blumenthal, Karl-Rainer. 2020. "Data for: "What’s Wrong with Digital Stewardship: Evaluating the Organization of Digital Preservation Programs from Practitioners’ Perspectives"". Qualitative Data Repository. https://doi.org/10.5064/F6DJRPLK. QDR Main Collection. V2

Project Overview The National Digital Stewardship Alliance surveyed practitioners in 2012 and again in 2017 to gauge, among other things, how satisfied they were with their organizations’ digital preservation function. This study seeks to understand what causes the high and rising levels of dissatisfaction that practitioners reported. We interviewe...

Data for: Barriers to Hospice and Palliative Care Utilization Among Adolescent and Young Adult Cancer Patients Living in Poverty

Nov 1, 2023 - Palliative Care Research Cooperative QDR

Mack, Jennifer. 2021. "Data for: Barriers to Hospice and Palliative Care Utilization Among Adolescent and Young Adult Cancer Patients Living in Poverty". Qualitative Data Repository. https://doi.org/10.5064/F6LBYMQO. Palliative Care Research Cooperative QDR. V2

Project Summary Background: Adolescents and young adults (AYAs; aged 15-39 years) with cancer frequently receive intensive measures at the end of life (EoL), but the perspectives of AYAs and their family members on barriers to optimal EoL care are not well understood. Methods: We conducted qualitative interviews with 28 bereaved caregivers of AYAs...

Translational Research Group: Ebola 100 Project

Nov 1, 2023

Fosher, Kerry. 2020. "Translational Research Group: Ebola 100 Project". Qualitative Data Repository. https://doi.org/10.5064/F68PQFS8. QDR Main Collection. V2

Project Summary This project was developed to contribute military voices to the larger Ebola 100 Project, which was run by a consortium of individuals and institutions and had the goal of creating a public archive of interviews with individuals involved in the West Africa Ebola outbreak of 2014-2015. Data consist of 8 transcripts of semi-structured...

Data for: “I could not bear it”: Perceptions of Chronic Pain among Somali Pastoralists in Ethiopia. A Qualitative Study

Oct 30, 2023

Baum, Eleonore; Abdi, Sied; Arab Abdilahi, Roda. 2023. "Data for: “I could not bear it”: Perceptions of Chronic Pain among Somali Pastoralists in Ethiopia. A Qualitative Study". Qualitative Data Repository. https://doi.org/10.5064/F6N2GOC9. QDR Main Collection. V1

Project Overview Pain is a major public health problem in the Global South, particularly among marginalized communities, such as Somali pastoralists. Yet, the topic of chronic pain has not yet been comprehensively studied in Sub-Saharan Africa, specifically in the Somali region of Ethiopia, formally known as Somali Regional State (SRS). Therefore,...

Data for: Mental Health and Access to Care in the Montagnard Migrant Community: Examining Perspectives across Four Generations in North Carolina

Oct 16, 2023

McGinley, John; Ksor, Risuin; Bush, Catherine. 2023. "Data for: Mental Health and Access to Care in the Montagnard Migrant Community: Examining Perspectives across Four Generations in North Carolina". Qualitative Data Repository. https://doi.org/10.5064/F6XFC4RG. QDR Main Collection. V2

Project Overview The “Montagnards” (“mountain people” in the French language) represent a diverse array of cultures originating in the highlands of Vietnam. Largely isolated farmers or hunter-gather communities, the Montagnards were recruited by, and fought with, the American Special Forces throughout the Vietnam War. When the war ended with the fa...

Qualitative Data from the Feasibility Assessment of a Traumatic Brain Injury Predictive Modeling Tool

Oct 11, 2023

O'Leary, Paige. 2023. "Qualitative Data from the Feasibility Assessment of a Traumatic Brain Injury Predictive Modeling Tool". Qualitative Data Repository. https://doi.org/10.5064/F6AALALY. QDR Main Collection. V1

Project Overview The purpose of this study was to test the feasibility of implementing a traumatic brain injury (TBI) prognostic model as a clinical decision support tool at Kilimanjaro Christian Medical Center (KCMC) and amongst Duke-affiliated healthcare providers. Our prognostic model is a statistical tool that uses clinical information to predi...

Data for: The Bystander Affect Detection (BAD) Dataset for Failure Detection in HRI

Sep 25, 2023

Bremers, Alexandra; Fang, Xuanyu; Friedman, Natalie; Ju, Wendy. 2023. "Data for: The Bystander Affect Detection (BAD) Dataset for Failure Detection in HRI". Qualitative Data Repository. https://doi.org/10.5064/F6TAWBGS. QDR Main Collection. V1

Project Overview For a robot to repair its own error, it must first know it has made a mistake. One way that people detect errors is from the implicit reactions from bystanders – their confusion, smirks, or giggles clue us in that something unexpected occurred. To enable robots to detect and act on bystander responses to task failures, we developed...

Experiences of Serious Illness Conversations (SICs) to Drive Health Equity in Serious Illness Care

Jul 28, 2023 - Palliative Care Research Cooperative QDR

Izumi, Seiko. 2023. "Experiences of Serious Illness Conversations (SICs) to Drive Health Equity in Serious Illness Care". Qualitative Data Repository. https://doi.org/10.5064/F6YCW448. Palliative Care Research Cooperative QDR. V1

Project Overview The primary purpose of this study is to describe the experience with and perception about serious illness conversations (SICs) from the perspective of patients from underserved minoritized groups. Secondary goal is to identify structure and contents that make SICs accessible and acceptable by patients from underserved minoritized g...

Data for: Building Evidence for a Concurrent Hospice and Dialysis Program for Terminal Patients with End-Stage Renal Disease (ESRD)

Jun 27, 2023 - Palliative Care Research Cooperative QDR

Schell, Jane; Ernecoff, Natalie. 2023. "Data for: Building Evidence for a Concurrent Hospice and Dialysis Program for Terminal Patients with End-Stage Renal Disease (ESRD)". Qualitative Data Repository. https://doi.org/10.5064/F6DQNQWP. Palliative Care Research Cooperative QDR. V1

Project Overview In this study, we aimed to understand patient, family caregiver, clinician, and administrator perspectives on barriers and facilitators to implementing concurrent hospice-dialysis in diverse settings. To this end, we conducted formative interviews with patients, family caregivers, clinicians, and administrators to assess the feasib...

Practitioner Perspectives on the Values and Ethics of Library Assessment

Mar 28, 2023

Young, Scott W. H.. 2023. "Practitioner Perspectives on the Values and Ethics of Library Assessment". Qualitative Data Repository. https://doi.org/10.5064/F6ORSLQF. QDR Main Collection. V1

Project Summary This project asks: “How can library assessment be practiced ethically?” It includes data from a survey and a set of individual interviews. The survey targeted library assessment practitioners across North America, asking respondents to share the values that are relevant for their work. The survey data were analyzed via grounded theo...

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