The Palliative Care Research Cooperative Group (PCRC) is a vibrant interdisciplinary research community committed to advancing rigorous palliative care science and improving care for people with serious illness.

This repository collection is supported by the Palliative Care Research Cooperative Group, with funding from the National Institute of Nursing Research (U2CNR014637).

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Understanding advance care planning in patients and care partners living with Parkinson’s disease
Understanding advance care planning in patients and care partners living with Parkinson’s disease
Apr 19, 2022
Lum, Hillary. 2022. "Understanding advance care planning in patients and care partners living with Parkinson’s disease". Qualitative Data Repository. https://doi.org/10.5064/F6GZGCJB. Palliative Care Research Cooperative QDR-EOLPC . V1
Project Summary Objective: Advance care planning (ACP) is a core quality measure in caring for individuals with Parkinson disease (PD) and there are no best practice standards for how to incorporate ACP into PD care. This study describes patient and care partner perspectives on A...
Advance Care Planning in Hospice Organizations: A Qualitative Pilot Study
Advance Care Planning in Hospice Organizations: A Qualitative Pilot Study
Nov 10, 2021
Harrison, Krista. 2021. "Advance Care Planning in Hospice Organizations: A Qualitative Pilot Study". Qualitative Data Repository. https://doi.org/10.5064/F6YMWPUX. Palliative Care Research Cooperative QDR-EOLPC . V1
Project Summary: In 2016, we conducted a qualitative, descriptive multisite study of the practices, attitudes, and measurement of the ways in which clinicians elicit goals and values for hospice care, the provision of that care, and changes in these practices over time. At the ti...
Unplanned Admission to the ICU: A Qualitative Study Examining Family Member Experiences
Unplanned Admission to the ICU: A Qualitative Study Examining Family Member Experiences
Jul 12, 2021
Jennerich, Ann L.. 2021. "Unplanned Admission to the ICU: A Qualitative Study Examining Family Member Experiences". Qualitative Data Repository. https://doi.org/10.5064/F6GXXBVD. Palliative Care Research Cooperative QDR-EOLPC . V1
Project Summary The project seeks to create knowledge about family members' experiences during hospital stays complicated by a patient's unplanned admission to the ICU. Qualitative data were collected from semi-structured interviews with families of patients who were transferred...
Data for: Barriers to Hospice and Palliative Care Utilization Among Adolescent and Young Adult Cancer Patients Living in Poverty
Data for: Barriers to Hospice and Palliative Care Utilization Among Adolescent and Young Adult Cancer Patients Living in Poverty
Apr 22, 2021
Mack, Jennifer. 2021. "Data for: Barriers to Hospice and Palliative Care Utilization Among Adolescent and Young Adult Cancer Patients Living in Poverty". Qualitative Data Repository. https://doi.org/10.5064/F6LBYMQO. Palliative Care Research Cooperative QDR-EOLPC . V1
Project Summary Background: Adolescents and young adults (AYAs; aged 15-39 years) with cancer frequently receive intensive measures at the end of life (EoL), but the perspectives of AYAs and their family members on barriers to optimal EoL care are not well understood. Methods: We...
Anticoagulation Therapy on Discharge to Hospice Care
Anticoagulation Therapy on Discharge to Hospice Care
Jan 19, 2021
Furuno, Jon P.. 2021. "Anticoagulation Therapy on Discharge to Hospice Care". Qualitative Data Repository. https://doi.org/10.5064/F69JKYSS. Palliative Care Research Cooperative QDR-EOLPC . V1
Project Summary The goal of this qualitative study was to better understand antithrombotic decision making on discharge to hospice care. This study was part of a larger mixed-methods study which examined the frequency and indication for antithrombotic prescriptions on discharge t...
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