1 to 5 of 5 Results
Apr 19, 2022
Lum, Hillary. 2022. "Understanding advance care planning in patients and care partners living with Parkinson’s disease". Qualitative Data Repository. https://doi.org/10.5064/F6GZGCJB. Palliative Care Research Cooperative QDR-EOLPC . V1
Project Summary Objective: Advance care planning (ACP) is a core quality measure in caring for individuals with Parkinson disease (PD) and there are no best practice standards for how to incorporate ACP into PD care. This study describes patient and care partner perspectives on A...
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Nov 10, 2021
Harrison, Krista. 2021. "Advance Care Planning in Hospice Organizations: A Qualitative Pilot Study". Qualitative Data Repository. https://doi.org/10.5064/F6YMWPUX. Palliative Care Research Cooperative QDR-EOLPC . V1
Project Summary: In 2016, we conducted a qualitative, descriptive multisite study of the practices, attitudes, and measurement of the ways in which clinicians elicit goals and values for hospice care, the provision of that care, and changes in these practices over time. At the ti...
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Jul 12, 2021
Jennerich, Ann L.. 2021. "Unplanned Admission to the ICU: A Qualitative Study Examining Family Member Experiences". Qualitative Data Repository. https://doi.org/10.5064/F6GXXBVD. Palliative Care Research Cooperative QDR-EOLPC . V1
Project Summary The project seeks to create knowledge about family members' experiences during hospital stays complicated by a patient's unplanned admission to the ICU. Qualitative data were collected from semi-structured interviews with families of patients who were transferred...
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Apr 22, 2021
Mack, Jennifer. 2021. "Data for: Barriers to Hospice and Palliative Care Utilization Among Adolescent and Young Adult Cancer Patients Living in Poverty". Qualitative Data Repository. https://doi.org/10.5064/F6LBYMQO. Palliative Care Research Cooperative QDR-EOLPC . V1
Project Summary Background: Adolescents and young adults (AYAs; aged 15-39 years) with cancer frequently receive intensive measures at the end of life (EoL), but the perspectives of AYAs and their family members on barriers to optimal EoL care are not well understood. Methods: We...
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Jan 19, 2021
Furuno, Jon P.. 2021. "Anticoagulation Therapy on Discharge to Hospice Care". Qualitative Data Repository. https://doi.org/10.5064/F69JKYSS. Palliative Care Research Cooperative QDR-EOLPC . V1
Project Summary The goal of this qualitative study was to better understand antithrombotic decision making on discharge to hospice care. This study was part of a larger mixed-methods study which examined the frequency and indication for antithrombotic prescriptions on discharge t...
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