The Palliative Care Research Cooperative Group (PCRC) is a vibrant interdisciplinary research community committed to advancing rigorous palliative care science and improving care for people with serious illness.

This repository collection was supported by the Palliative Care Research Cooperative Group, with funding from the National Institute of Nursing Research (U2CNR014637). It remains open for submissions from palliative care researchers.

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Understanding advance care planning in patients and care partners living with Parkinson’s disease
Understanding advance care planning in patients and care partners living with Parkinson’s disease
Apr 19, 2022
Lum, Hillary. 2022. "Understanding advance care planning in patients and care partners living with Parkinson’s disease". Qualitative Data Repository. https://doi.org/10.5064/F6GZGCJB. Palliative Care Research Cooperative QDR. V1
Project Summary Objective: Advance care planning (ACP) is a core quality measure in caring for individuals with Parkinson disease (PD) and there are no best practice standards for how to incorporate ACP into PD care. This study describes patient and care partner perspectives on ACP to inform a patient- and care partner-centered framework for clinic...
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