The Palliative Care Research Cooperative Group (PCRC) is a vibrant interdisciplinary research community committed to advancing rigorous palliative care science and improving care for people with serious illness.

This repository collection was supported by the Palliative Care Research Cooperative Group, with funding from the National Institute of Nursing Research (U2CNR014637). It remains open for submissions from palliative care researchers.

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DeCamp_14.pdf
Jun 28, 2022 - Ethical Challenges When Engaging Patients and Families in End-of-Life and Palliative Care Research
Adobe PDF - 161.2 KB - SHA512: 77910aa04c1098e2fa560b4d19c7970cf70eea7e58a256ca23de80ac52e7fd9ae947a1a37124e54f039c15bfdb9f4acf0b3e506fb03d33cf7e3519f17a37fb74
Data
DeCamp_15.pdf
Jun 28, 2022 - Ethical Challenges When Engaging Patients and Families in End-of-Life and Palliative Care Research
Adobe PDF - 201.9 KB - SHA512: 41be9bc835aa33007038e5736870483819c98267f256bac903cda34f0d9018ef0607fa40f8a21c928c7b69caa9e832dda6b3c0b583ff3b18a295e05639da0b90
Data
DeCamp_16.pdf
Jun 28, 2022 - Ethical Challenges When Engaging Patients and Families in End-of-Life and Palliative Care Research
Adobe PDF - 194.1 KB - SHA512: 2201c0b93c0091f3cefce98d2f29057e8f29580f7a6ffe5ab88f2dc96afb521cb0c4ac115ef3e37614f9a53424cfcf75d28d0fca57fdea4e77a91cfc62e99965
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DeCamp_17.pdf
Jun 28, 2022 - Ethical Challenges When Engaging Patients and Families in End-of-Life and Palliative Care Research
Adobe PDF - 203.0 KB - SHA512: cb5ab867f9170f6799667897f6af7d309e8193a55d266cfd2b0be69d5be74798f81ad73591a597a4cde35b1033f6013f03d9d8a7c0399e9f58cdaad5ef88ee9c
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DeCamp_18.pdf
Jun 28, 2022 - Ethical Challenges When Engaging Patients and Families in End-of-Life and Palliative Care Research
Adobe PDF - 176.0 KB - SHA512: 306f91dae479471cc5ff0e0ab3beafa02246e45b4d9e0d46942d637506a008aac49d25ed331d36657ec76e1cae994d8dec264069e496694ed16224a3deeb27c3
Data
DeCamp_19.pdf
Jun 28, 2022 - Ethical Challenges When Engaging Patients and Families in End-of-Life and Palliative Care Research
Adobe PDF - 203.4 KB - SHA512: a6b221e03c29916ceab40482e530c23c634446a02fdadd388a94ac11fcded959ec28c13698c274b2e4fd8a2b8d4f08e69916f58ade1ee9d81719dc66c191bef1
Data
README_DeCamp.txt
Jun 28, 2022 - Ethical Challenges When Engaging Patients and Families in End-of-Life and Palliative Care Research
Plain Text - 3.7 KB - SHA512: 14bb05b68132e1744d735ca0be8a60a4161314e8d140bcb006b3f674b9dcd4247e7f79e46b2cd95685627763a1364997052fc817d4565a7bd4d65c0cd7ec4a90
Documentation
Understanding advance care planning in patients and care partners living with Parkinson’s disease
Understanding advance care planning in patients and care partners living with Parkinson’s disease
Apr 19, 2022
Lum, Hillary. 2022. "Understanding advance care planning in patients and care partners living with Parkinson’s disease". Qualitative Data Repository. https://doi.org/10.5064/F6GZGCJB. Palliative Care Research Cooperative QDR. V1
Project Summary Objective: Advance care planning (ACP) is a core quality measure in caring for individuals with Parkinson disease (PD) and there are no best practice standards for how to incorporate ACP into PD care. This study describes patient and care partner perspectives on ACP to inform a patient- and care partner-centered framework for clinic...
Lum_53002.Patient_PCArm_2017.07.14_UCD.pdf
Apr 19, 2022 - Understanding advance care planning in patients and care partners living with Parkinson’s disease
Adobe PDF - 234.9 KB - SHA512: 22058f7581f15dda3ef45cec40bf047841ce127db124fa55df746cf405a9d81517e4cf67edbc5f5c2cfc2f953e687e195a1e26609f560592391676f6dab3c073
Lum_53003.CarePart_SC_2017.07.11_UCD.pdf
Apr 19, 2022 - Understanding advance care planning in patients and care partners living with Parkinson’s disease
Adobe PDF - 236.5 KB - SHA512: 4e8a840624cfae06eceeacbe288844a095fa68bc9127c10f4f9568821e933abc031bf80d7f0766d3e3c64bf4614940fa9940cb2f047865ae8e60b3e324f2967d
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