The Palliative Care Research Cooperative Group (PCRC) is a vibrant interdisciplinary research community committed to advancing rigorous palliative care science and improving care for people with serious illness.

This repository collection was supported by the Palliative Care Research Cooperative Group, with funding from the National Institute of Nursing Research (U2CNR014637). It remains open for submissions from palliative care researchers.

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Gazaway-et-al_Interview_Patient015.pdf
Jun 30, 2024 - Exploring the Acceptability of a Community-Enhanced Intervention to Improve Decision Support Partnership between Patients with Chronic Kidney Disease and Their Family Caregivers
Adobe PDF - 242.5 KB - SHA512: 2e35a1fb32acae83e553db3601c5ba50362de6e3028dde3ecc2148eeaf6bcdf6ba3345e805e42b0346c005d25287edd8b778dd1a4248d8ae5892d3fe10d1ed95
Data
README_Gazaway-et-al.txt
Jun 30, 2024 - Exploring the Acceptability of a Community-Enhanced Intervention to Improve Decision Support Partnership between Patients with Chronic Kidney Disease and Their Family Caregivers
Plain Text - 5.7 KB - SHA512: a71a19b7c3dcc0dc097bb25b0d7affa62f068937446be0e31491ceecbc3935202b221f0d62263314be4722b7545f57052bd7c7751cceed6b82b66cea7b616928
Documentation
Data for: Barriers to Hospice and Palliative Care Utilization Among Adolescent and Young Adult Cancer Patients Living in Poverty
Data for: Barriers to Hospice and Palliative Care Utilization Among Adolescent and Young Adult Cancer Patients Living in Poverty
Nov 1, 2023
Mack, Jennifer. 2021. "Data for: Barriers to Hospice and Palliative Care Utilization Among Adolescent and Young Adult Cancer Patients Living in Poverty". Qualitative Data Repository. https://doi.org/10.5064/F6LBYMQO. Palliative Care Research Cooperative QDR. V2
Project Summary Background: Adolescents and young adults (AYAs; aged 15-39 years) with cancer frequently receive intensive measures at the end of life (EoL), but the perspectives of AYAs and their family members on barriers to optimal EoL care are not well understood. Methods: We conducted qualitative interviews with 28 bereaved caregivers of AYAs...
Mack_4266-02_Interview_20180328.pdf
Nov 1, 2023 - Data for: Barriers to Hospice and Palliative Care Utilization Among Adolescent and Young Adult Cancer Patients Living in Poverty
Adobe PDF - 134.2 KB - SHA512: 6743fae41dbfc18afad693ef4f7e484e3517c3c0d3524574915fe7a7e77003cbd4ab516f8c58452541522310f36aa60243976f33836521ea67eb09db1b72771c
Data
Mack_4266-13_Interview_20170811.pdf
Nov 1, 2023 - Data for: Barriers to Hospice and Palliative Care Utilization Among Adolescent and Young Adult Cancer Patients Living in Poverty
Adobe PDF - 157.3 KB - SHA512: b9aae0544b9cc67a6a8528a65d9293cabce67ba4f934a13e24c67a69df38b471406ea39563665c255fd1f645afafa96b70ed0f4bdc1eb1b77dac353b104d05f8
Data
Mack_4266-14_Interview_20180221.pdf
Nov 1, 2023 - Data for: Barriers to Hospice and Palliative Care Utilization Among Adolescent and Young Adult Cancer Patients Living in Poverty
Adobe PDF - 163.4 KB - SHA512: f1f88243422337e491f9d70d55519b7c23b6ff2ef540c3216e4c7765704795611015d2c36f567fbb79871651217904efcb3b4413f8f146a93c8ce52117aabbd5
Data
Mack_4266-29_Interview_20170731.pdf
Nov 1, 2023 - Data for: Barriers to Hospice and Palliative Care Utilization Among Adolescent and Young Adult Cancer Patients Living in Poverty
Adobe PDF - 127.9 KB - SHA512: 27113deeb11287a7400e9cc1c90945b57a2f9ee06b1400cd18f100dc2363c517c66078fe5f09151e4c18df2e25abc1025310d4674df74247863ea03ee9239cfb
Data
Mack_4266-61_Interview_20171003.pdf
Nov 1, 2023 - Data for: Barriers to Hospice and Palliative Care Utilization Among Adolescent and Young Adult Cancer Patients Living in Poverty
Adobe PDF - 117.5 KB - SHA512: e85757461a9ba6a26abcca3ecf0d6ac43eaa8a88de96739770512f550af0880cc976dfa763f4b1827ef2afb8c1f86e82291f1cb0aa2594874f15711b1d05b73e
Data
Mack_4266-63_Interview_20171030.pdf
Nov 1, 2023 - Data for: Barriers to Hospice and Palliative Care Utilization Among Adolescent and Young Adult Cancer Patients Living in Poverty
Adobe PDF - 107.2 KB - SHA512: e6d7dcd42e3924792f71df1754afbf1690928d217267c2266e7a6dc6a16b9aede0e9329b8b4004fd9fb2b6c32380749d9877660e2effff81df00fb07d74668ec
Data
Mack_4266-72_Interview_20171106.pdf
Nov 1, 2023 - Data for: Barriers to Hospice and Palliative Care Utilization Among Adolescent and Young Adult Cancer Patients Living in Poverty
Adobe PDF - 105.7 KB - SHA512: 653e525093142e54867d11fbdb11e1a765e9cf97b4754cacdeec2fc0c826d723070caa6a89992d83a20bfb779b2697c5ae9650498a6871d55db8ddaaae11e11a
Data
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